We are delighted to collaborate with the talented photographers at Something Blue Photography for our C.I.T.Y. Close-Up program. Their patience and flexibility have allowed us to provide monthly sensory-friendly photo sessions that truly capture each family's joy.
Their mom described both of her "Rose Bros:"
"Zander Rose, our little Zander Salamander. At age 2, Zander only had a few words. At 6, Zander proudly tells us about his favorite countries in the world, his favorite shells in the ocean, and his favorite Pikachu characters. He practices with Google Earth to correctly say different cities and landmarks. He even uses language for very convincing arguments too. We are so proud of our Z man!
Jonah Rose, our little Jonah bear. Jonah has been working so very hard on tongue mobility and speech after his tongue tie/adenoid surgery and overall speech delay. Whether it's making clicking noise with his tongue, holding a button string with his lips tight, or crunching an oyster cracker with roof of his mouth, Jonah has energetically practiced these exercises with his therapists. In the past, Jonah often relied on mom or his big brother to translate. Now his teachers and peers understand more and more! We are so proud of our Jbear!"
His mom told us what their family is celebrating:
"Our little man has come a long way in the last six months. With a dual diagnosis of Down Syndrome and Autism, he is non verbal and communication has been a huge challenge. He received his AAC device in October and since then we've noticed his vocabulary and communication taking off. It has been absolutely amazing seeing his progress and hearing his voice, and we couldn't be more proud of his hard work!"
Her mom says:
Camille has a high energy for life, arts/crafts, and all things Disney. Camille has experienced some difficulties with sleep, sensory issues and has a speech delay. Through working with her amazing therapists, there has been an increase in her speech and incredible advances in her use of play. Camille’s favorite things are Mickey and Minnie Mouse, Winnie the Pooh, and playing in water.
Just listen to what she has to say about her son, Noah:
"After an extraordinarily difficult year in the public school system, we enrolled Noah in therapeutic school and it was the absolute best decision, ever. Through carefully crafted sensory support, behavior intervention, and—most importantly—kindness and acceptance, we’ve seen an unbelievable amount of growth in Noah. From the ability to self-regulate; to a seemingly explosive use of expressive language; and even a new willingness to try unfamiliar foods, our family will be forever indebted to the wonderful community of therapists and medical professionals that support Noah every day.
Noah’s special interest is anything heart-shaped (especially pink heart-shaped beads!), and it is so fitting because he is the epitome of unconditional love. Noah is unapologetically himself, pink hearts and all, and he is the true light of our lives."
Her mom says:
"Evie is one sweet and strong toddler! Despite her developmental challenges, she has been working successfully with PT to improve her balance, coordination, and strength. Just in time for our big move to a new house in the suburbs, Evie mastered walking foot over foot up the stairs! This was a huge step forward, and we are so proud of her accomplishment."
Her proud mom says:
"Clare has had to work hard her entire life to get her body to do what she wants, but we are so proud of all the small successes that she has achieved. She’s starting to get the hang of sitting, learning how to clap, and can pick out Yes and No cards for simple questions. She is obviously highly motivated and eager to pick up new skills."
Here's what she has to say about her boys:
"Our boys have just returned to remote learning after nine successful weeks in person, so this is a big adjustment for our family right now. Just at the start of school, Adam was ready and successfully potty-trained very quickly, after years of us wanting him to do it. He did it on his time, as he always has done everything. My boys are my heart, and I feel lucky to be their mom."
Here's what she has to say about her charming son, Jaime:
"Jaime is now 18 months old and has Down Syndrome. From Heart Surgery at 5 months old to ear tubes, pneumonia, and a couple other hospital stays, Jaime keeps smiling and thriving. He just recently started holding his bottle, and started to pull himself to stand up. Using his hands and fingers has always been a struggle for him, so this is huge progress.
I'm so thankful for this group and for Something Blue Photography that they were able to capture these photos. With everything that was going on at birth with his feeding issues and heart repair, I never did any other photoshoots. I'm so excited to finally put him up on my wall."
According to his mom:
"(When Ryden was born), I did not get to hold him for 36 days. He had to go to three different hospitals, had four serious scares of barely making it, multiple surgeries & spent 106 days in the NICU. Some days we felt like we would never be able to leave. It was the craziest roller coaster ride ever, and I cannot even begin to explain, but we are so proud of him. He is our miracle warrior.
We see nine different specialists, six different therapists weekly, and he just had his fifth surgery last week in the midst of the COVID-19 pandemic. He still has a few more surgeries to go, but we could not be more proud of our boy. He is a true fighter."